A PMOS (formerly PCOS) research project needs you!

October 5, 2026|Dorothée Dinne| Time to read: 1 min

European researchers are currently building a tool to better understand and track PMOS. They need your voice.

👉 Answer the questionnaire

A European based scientific project.

The hope4PMOS project, funded by Horizon Europe, is developing a questionnaire designed to collect real-world data on PMOS over time. It will be integrated into a mobile application (the Lucy app). Before finalising it, the researchers want to make sure it includes topics that are relevant from patient, clinical, and research perspectives

It's happening so let's help!

I'm sooo happy to see that more and more researches are taking place. And when such a research actually tries to gather inputs from the actors, it feels like a shift worth supporting. If you can give a bit of your time to help, please do 🫶

Who can participate? Anyone living with PMOS/PCOS, healthcare professionals, and researchers. Available in French, English, German, Dutch, Danish and Hungarian.

It takes approximately 5 to 10 minutes.

⚠️ Deadline: October 14, 2026 at 2pm CET

👉 Answer the questionnaire

A French promotional poster for the hope4PMOS project, featuring a light blue and white striped border, purple and blue text, a central QR code, and logos for hope4PMOS and Aarhus University.

Picture credit: Frank Flores for Unsplash

💡

This information is for educational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always consult a qualified healthcare provider for specific health concerns, especially if symptoms are severe, sudden, or accompanied by fever/heavy bleeding.

Our commitment

Dorothée Dinne

Founder @ Fâmme

Founder of Fâmme and your friendly tech nerd turned women's health advocate. I've spent 15+ years as a product designer and art director, but my biggest breakthrough came from my own 30-year journey with medical dismissal and pain. Now I'm building Fâmme, a curated ecosystem connecting women to trustworthy health professionals and real support. Mother and Belgium-based believer that technology should serve empathy, not replace it.

Feel free to connect with me

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Frequently asked questions

PMOS (Polyendocrine Metabolic Ovary Syndrome) is the updated name proposed by the scientific community to better reflect the complexity of the condition. PMOS acknowledges that the condition involves broader metabolic and endocrine systems. The two terms currently refer to the same condition but the renaming is part of an ongoing shift in how research and clinical care approach it.

hope4PMOS is an EU-funded research project (Horizon Europe) led by Aarhus University. Its goal is to develop a validated questionnaire that will help shape a mobile app called Lucy.

The questionnaire is open to people living with PMOS or PCOS, healthcare professionals, and researchers. It is available in six languages: English, French, German, Dutch, Danish, and Hungarian. It takes approximately 5 to 10 minutes to complete.

Research questionnaires shape the questions scientists ask for years to come. By sharing your experience, you directly influence what gets measured, studied, and ultimately understood about PMOS. It is one of the most concrete ways to contribute to better care... For yourself and for others coming after you.